Construire sa base de données - Les Mercredis FILFOIE #3

Construire sa base de données - Les Mercredis FILFOIE #3

FILFOIE Wednesdays 3

🎙 Filière de Santé Maladies Rares du Foie - FILFOIE 👥 2K 📅 October 2, 2026 ⏱ 39 min 👁 24 📄 tutorial 🧭 2026-10-03
Available in: English (current) Français

Keywords

data managementclinical databasemissing datadata formatsresearch data

Summary

This webinar, part of the FILFOIE ‘Mercredis’ series, focuses on the construction and management of databases for clinical research, specifically within the field of rare liver diseases. The speaker covers different types of data (socio-demographic, behavioral, clinical, biological, imaging, genetic), emphasizing the need for precise naming and standardized formats, particularly for dates and biological measurements (units, thresholds). Detailed examples from Excel illustrate how to structure data, avoid messy free-text entries, and create binary variables for multi-choice questions. The webinar also addresses handling missing data, including imputation strategies for partial dates (e.g., using the 15th for missing day) and the importance of distinguishing missing values from true negatives. It recommends using a long format for longitudinal data, which facilitates error detection and consistent collection. Best practices are provided for variable naming (avoiding spaces, special characters, inconsistent capitalization) and the use of a data dictionary. The session concludes with a brief note on pseudonymization, clarifying that research data are never fully anonymized but pseudonymized.

162 words

Critical Evaluation

Value of the Information & Strength of the Argument

The video delivers practical, actionable advice grounded in common research data management challenges. Each recommendation is illustrated with concrete examples, such as ambiguous dates, missing units, and inconsistent labeling, making the argumentation clear and persuasive. The speaker justifies each practice by explaining potential downstream analysis problems (e.g., mixing date columns, errors in imputation, or fallacious coding). The emphasis on uniform formatting and explicit variable definitions is both valuable and well argued, providing a solid basis for reproducible research.

Scientific Rigor, Source Quality, Title Accuracy

The webinar does not cite external scientific literature but rests on widely accepted standards in clinical data management. The speaker demonstrates domain expertise and internal consistency. The title is an adequate description of the content, as it is indeed a tutorial on building databases. No conflicting information is presented, and the advice aligns with common guidelines for handling research data.

153 words

Title / Content Match

The title accurately reflects the content, which is a practical webinar on building a research database.

Quality & Reliability

8/10

The webinar provides practical, well-structured guidance on database construction for clinical research, based on established best practices. However, it lacks citation of specific literature or sources, relying on the speaker's expertise. The content is consistent with standard research data management principles.

Key Moments

Cited Sources

Contribution & Novelties

The webinar offers a clear, systematic approach to constructing a clinical database, filling a practical gap for researchers who may be unfamiliar with data management principles. Its originality lies in the concrete examples and the emphasis on data quality from the start. The advice on date imputation (e.g., using the 15th for missing day) and the recommendation to prefer long formats for longitudinal data are particularly practical. It also highlights the need for a data dictionary, a practice often overlooked.

Pour aller plus loin :

  • Clinical data management — Provides background on the broader discipline of managing clinical trial data.
  • Missing data — Discusses types of missingness and imputation methods, relevant to the webinar’s handling of incomplete information.
  • Data dictionary — Explains the concept of a data dictionary, which the speaker strongly recommends for clarifying variables and formats.

138 words

Radar Profile

The radar profile shows strong scores in quantity and quality of information, indicating a content-rich tutorial, while moderate technical level and reliability suggest it is accessible but not groundbreaking. The overall balance reflects a practical, competent training session.

Reliability 7/10